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Reports from the MHC data base

Report from the Questionnaire (PDF)
Report from the Observation Chart (PDF)

Estimated occurrence

Unknown, but a rough estimate is 3 per 10,000 children and adolescents.


Unknown by definition

General symptoms

The term ”Anonymous” was introduced by Professor Bengt Hagberg, and is used in cases of severe brain disease when no diagnosis can be established even after extensive investigation. Anonymous can be divided into two main groups: degenerative brain diseases and non-degenerative (stationary) congenital, severe disturbance in brain development. Varying degrees of mental retardation, impaired motor function and visual impairment are common, as is epilepsy.

Orofacial/odontological symptoms

Impaired oral motor skills are frequent, and may give rise to sucking, eating and speech difficulties, malocclusion and drooling. Daytime tooth grinding is reported relatively often. The most common malocclusions are open bite and overjet. The risks of both gingivitis and caries are increased.

Orofacial/odontological treatment

  • It is important that individuals with this diagnosis receive dental preventive treatment, with extra prophylactic care and information on oral hygiene from an early age.
  • Regular check-ups of dental and jaw development. Orthodontist should be consulted when needed.
  • Tooth grinding should be followed up, and be managed with a splint when necessary.
  • Feeding and swallowing difficulties are investigated and treated by a specialist team at the hospital or multidisciplinary treatment center.
  • Training in oral motor skills and extra stimulation may be necessary in cases of eating difficulties, speech difficulties and drooling.
  • Learning alternative and augmentative ways to communicate is often important.



  • The rare diseases database of the Swedish National Board of Health and Welfare.
  • The MHC database - The Mun-H-Center database on oral health and orofacial function in rare diseases.
  • The Documentation from the Ågrenska national competence centre for rare diseases.
Updated: 2017-03-24 11:46